© 2019 The Canadian Cerebral Palsy Registry

Do genes play a role in Cerebral Palsy?

Each child with cerebral palsy (CP) is unique in their abilities and the risk factors they were exposed to. Recent evidence suggests that our genes could play a role in the development of CP.

 

We each have a unique genetic code (DNA). It is possible that differences in DNA could lead to CP. This study aims to understand the genetic contribution to developing CP. It is hoped that this information will improve the care provided to children with CP, and help develop new treatments.

 

Genetic Insights to the Causes of Cerebral Palsy Project

Cross-Canada recruitment now open!
Why should I get involved?

Your participation may help:

  • Researchers to better understand the causes of CP

  • Lead to the development of new diagnostic tests and treatments for CP

You may also benefit by learning about specific genes associated with your child’s CP. There are no directs costs to you for participating in this study, and a gift card is offered at the end of your participation. Your participation should coincide with your child’s regular clinical visits.

 

The study's Principal Investigators are

Dr Darcy Fehlings

University of Toronto,

Holland Bloorview Kids Rehabilitation Hospital &

Bloorview Research Institute

 

Dr Maryam Oskoui

McGill University,

Montreal Children's Hospital &

McGill University Health Centre Research Institute

 

Safety & Privacy
More information
 
Contact us

Read a summary of our last Genomics project, which had surprising findings and suggests links between CP and genetics: PDF online.

 

Participation only requires that you and your child provide a saliva sample therefore, we do not foresee any serious risks in participating.

Your samples will be sent to the Centre for Applied Genomics in Toronto. All of your genetic material will be read from your samples. If we find any results that may impact your health, we will ask you to give a blood sample and/or cheek swab so we can confirm these findings.

Your names and identifying information will be removed from your samples and stored separately to ensure privacy and data security.

 

Project funding from the Research Foundation of the CP Alliance and the Canadian Institutes of Health Research.

 

The findings were also reported on by CTV News, CBC News, and the Montreal Gazette.